A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Thursday, October 05, 2006

Good Morning, another glorious night with Claire. Mommy has already been up, dressing up her little miracle with bracelet's and pink fur. Claire wants a photo shoot a little later with big bro Johnny, & I'm sure we will soon have pictures of her all dolled up.
Claire was weighed for the first time since birth. She has only lost 1oz, so now she weighs 3lb5oz. We are super pleased with just 1oz loss, although I'm sure she will continue down in weight for several days. They usually do not allow regular babies to go home until they get to four pounds, however, since nobody knows if she will even get to 4 lbs, they may let us all go early. We will just have to monitor her closely at home (when we get home, we will probably wish we were back here with so much help).
Please continue your prayers, you have NO idea how grateful we are, and how helpful they are! She is appearing a little jaundice, so we are waiting on lab results now. Of course, this should be only minor, but we are worried that this may be an early sign of certain organ problems. PRAY ON!!! We are going to try bottle feeding again later today.

9 Comments:

  • At 10:48 AM, October 05, 2006, Anonymous Anonymous said…

    Dear Tammy and Billy,

    I cannot begin to tell you once again, how moved I am by your incredible faith and strength during this time! She is so beautiful. I also wanted you to know that I send out Daily Scripture to a very large number of people here at Xante everyday. We also have prayer requests and I have forwarded a prayer request for your entire family to the group. The people in this group also forward prayer requests to friends that do not work here. We are all praying for your precious baby girl and you too! Tammy, my next door neighbor is Donna Arendall and I have shown her this site and have been keeping her posted on what is going on.

    With love and prayers,

    Jane Martin

     
  • At 11:07 AM, October 05, 2006, Anonymous Anonymous said…

    I just wanted to let you know how awesome it was to meet little Claire yesterday! Her name could not be any more appropriate - there is just no way ot look at this beautiful angel and not be filled with Hope. I look forward to the fashion show!
    Jacquelyn

     
  • At 12:28 PM, October 05, 2006, Blogger Pete Allen said…

    Billy,
    Just wanted you to know our prayers are with you and your family.. I had the Knights at St. Pius say a Rosary for Claire last night at our meeting....
    Good thoughts and prayers are going up...

    God Bless and Peace be with you...

    Pete & Michelle Allen

     
  • At 1:15 PM, October 05, 2006, Anonymous Anonymous said…

    Billy & Tammy,

    We are grateful for your openness & willingness to share all that you have, thank you. We are keeping all of you in our thoughts & prayers - baby Claire lends strength to us all.

    Warmest regards,

    Wally & Lisa Holst
    Atlanta, GA

     
  • At 4:08 PM, October 05, 2006, Anonymous Anonymous said…

    Dear Tammy and Billy,
    We just wanted to tell you that you are all in our prayers and thoughts. I'm so glad that you have shared this with us because it is truely helpfull in letting us stay in touch with Claire's and Tammy's visit at the hospital. She is soooo cute! oh! and big sis too of course!!!!
    with love and prayers, lots and lots of prayers, Donna and Louie

     
  • At 7:20 PM, October 05, 2006, Anonymous Anonymous said…

    The strength and faith of your family is an inspiration. It is wonderful that you are celebrating Claire's life. What a wonderful family you have! My thoughts and prayers are with you and your family.

    Love,

    Donna Arendall

    P. S. She is beautiful!

     
  • At 8:39 PM, October 05, 2006, Blogger Joseph Thompson said…

    The slide show was Great. We do give God the glory for these wonderful days with Claire. The slide show was wonderful and it is great to see you give the glory to God . Keep moving forward and enjoy the day. You guys were missed at the Shrip Boil.. but your folks represented you well. You remain in our Prayers.. Lots of Love Joe and Judy Thompson

     
  • At 10:05 PM, October 05, 2006, Anonymous Anonymous said…

    Hello Tammy and Billy. My name is Beverly Faulkner and I am a friend of your sister Sherry. We go to church together and she has been keeping me and my family updated about you and your family. First I want you to know that we stand in agreement with Sherry for the total healing of your "Little Angel" We believe that God has a will and a plan, and we also believe that it is the will of the Father to Heal! Sometimes he uses different things in our lives to draw us closer to Him. We have watched God move in our lives so many times and do things that only He could do and that is what we are asking Him to do for you and your family. Only something that He can do, something that no man can get the credit for, then all men will know what an awsome God we serve.

    Because of Jesus,

    Bruce and Beverly Faulkner

     
  • At 11:12 AM, October 06, 2006, Blogger Monica said…

    Congatulations!! I have been keeping up with and praying for Eliot, Matt and Ginny. Now little Claire will be added to my and my family's list. Keep your faith srong and He will provide all you will need.

    Monica McKenzie Tolson

     

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