HAPPY ONE DAY BIRTHDAY!!!! She had a completely UNEVENTFUL night, and it was GREAT. Claire continues to gain strength and coordination. We think we may have even heard her say War Eagle, but we're not sure.
Many times, children this small, even without trisomy, have a hard time sucking, swallowing, and breathing all at once. Claire was not able to do this either, she seemed to want to eat only, and forgo the breathing part (just a minor detail). She also seemed to spit out everything, without really swallowing it. We of course began to worry that her stomach did not attach to her esophagus (which can be common with trisomy babies). We decided to insert a small feeding tube through her mouth. Luckily, it did enter her stomach (which we assumed was great news). So now we feed her 13ml of formula through this tube. It is very easy, and possibly just temporary, until she gets a little more weight on her (and better coordination). So do not get upset if you see a picture of her with this tube, it is actually another good sign.
Mom is up and about, doing better than you could ever imagine.
LIFE IS GOOD!