A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Monday, October 02, 2006

Things are starting to get a little more real around the Cox household today. We know that Claire can be healed, and even though this is our will, it may not be His.

Since this site is dedicated to the Preparation, life, and death of Claire. We felt that today would be a good day to share with you some of our preparations for her arrival. We have had to make some difficult decisions for her expected short life. For example, since she may only live ten minutes or less, we have chosen to not have her put directly into a "warmer", as most babies are. Instead, we want to have "warmed" blankets readily available and hold her right away, this way giving her as much skin to skin comfort as possible. We have also decided not to intervene with any kind of "extra-ordinary" life support. Also, it is common with trisomy-18 for the child's esophagus not to be attached to it's stomach. We will have a feeding tube inserted if needed as to not have her suffer from starvation. We have basically taken the position as to give her anything for comfort, love and peace.

We have notified our priest, Father O'Conner, who will be at the hospital at the time of delivery for immediate Baptism. We have also bought burial plots for Claire, Tammy, and I, as well as an extra one (we may not like having neighbors real close to us, ha-ha). If you have not done this, I highly recommend it. It was a very difficult decision as to where to go, mainly because this is the ONLY decision in your life that will be permanent. But it is a comforting feeling, and enjoyable (although Tammy did not see it like this). Although our situation will be changing from hour to hour, we feel like we have addressed any possible scenario and are prepared for it.

We want to thank our family and friends for all of your support. We get excited each time we log onto this blog spot and read the comments you have left for us. They have been very uplifting for us and have helped us immensely through this difficult time. Many of you have asked if we mind if you send our site on to someone else, and of course we do not mind, we need all the prayers and support we can get. We will update this tomorrow as soon as possible.


  • At 1:50 PM, October 02, 2006, Anonymous Anonymous said…

    We are thinking about you guys today (as we have so often recently) and know that you must be filled with anticipation, anxiety and hope. Know that we are also filled with these feelings.

    We are with you and we are with Claire Hope. You are not and will not be alone, just as she is not and will not be alone. jay and nicky

  • At 4:58 PM, October 02, 2006, Anonymous Anonymous said…

    Dear Tammy and Billy,
    Please know you and you're family are in my thoughts and prayers.
    If you need anything call me. I am not going to call . I will wait on you Tammy.
    Please call me when you are up to it.
    God Bless You All.
    All My Love,

  • At 6:56 PM, October 02, 2006, Anonymous Anonymous said…

    Dear Billy & Tammy,

    Our prayers have been with you since we first learned about Claire. Your comments have been very moving and inspirational. You know we are always here for you and will be thinking about you tomorrow.

    Kati & Vincent

  • At 10:02 PM, October 02, 2006, Blogger Joseph Thompson said…

    Judy and Joe Thompson are thinking about you. Praying God will direct your path. He will be your strength. We also are praying for Claire . Trust in the Lord with all your heart and Lean not on your own understanding in all your ways aknowledge him and he will direct your paths. Yours in Christ Joe and Judy

  • At 10:27 PM, October 02, 2006, Anonymous Anonymous said…

    Dad and Tammy,
    I just want you to know that I have been praying a lot lately. I know that God has a plan for Claire and I am very anxicious to find out what he has in store for her and all of us. My prayer lately is for her healing and that I, as well as you and everyone else, will be able to watch her grow up. I want her to live her life, no matter if it's for a few minutes, hours, days or years.
    We all trust in God. Over the last few days, I have been talking to my friends and teachers about this. Over all I think my friends have been the most help. The other night, I was talking to Katie, she told me that her cousin Sam was predicted not to live. Today Sam is 3 years old and living his life. I hope in three years we will be looking back on this saying the same thing about Claire.
    No matter what happens, we all will know she lived the life God planned for her.
    I love you both very much.
    With all my love,

  • At 8:06 AM, October 03, 2006, Anonymous Anonymous said…

    It is Tuesday morning; It is important that you know there are an awful lot of people thinking about you guys and praying for you RIGHT NOW. God bless. j

  • At 8:30 AM, October 03, 2006, Anonymous Anonymous said…

    Tammy and Billy,

    Our thoughts and prayers are with you today.

    Your strong faith has been an example and inspiration to everyone. You have put your trust in God and he has and will see you through this time.

    Please know we are here for you and your family.

    With love and prayers,
    Derek, Michel, Matthew and Mason

  • At 9:22 AM, October 03, 2006, Anonymous Anonymous said…

    Dear Tammy,

    Just wanted you to know again, that you and your family are in my daily thoughts and prayers. I know that this journey in your life has been a difficult one and know that Jesus had been right beside you all of the way. Like so many others who have left messages, your Faith and love of God, has been an inspiration to all.
    With love an prayers,

    Jane Martin

  • At 9:26 AM, October 03, 2006, Anonymous Anonymous said…

    Tammy & Billy,
    Your courage & openness in establishing this blog and welcoming us all to share in your lives as you await the arrival of Claire is so special. We are all thinking of you and praying for the best.

    Your friends from Talladega,
    Gary & Sheila, Steve & Debbie

  • At 6:55 PM, October 03, 2006, Anonymous Anonymous said…

    hey Mrs.Tammy
    this is veronica emily's friend from school i just wanted to say i am happy and sad at the same time. even though i have goon though many births none likee this one i hope that a miracle will happen and that she will live a full life
    godd bless you and the family


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