Things are starting to get a little more real around the Cox household today. We know that Claire can be healed, and even though this is our will, it may not be His.

Since this site is dedicated to the Preparation, life, and death of Claire. We felt that today would be a good day to share with you some of our preparations for her arrival. We have had to make some difficult decisions for her expected short life. For example, since she may only live ten minutes or less, we have chosen to not have her put directly into a "warmer", as most babies are. Instead, we want to have "warmed" blankets readily available and hold her right away, this way giving her as much skin to skin comfort as possible. We have also decided not to intervene with any kind of "extra-ordinary" life support. Also, it is common with trisomy-18 for the child's esophagus not to be attached to it's stomach. We will have a feeding tube inserted if needed as to not have her suffer from starvation. We have basically taken the position as to give her anything for comfort, love and peace.

We have notified our priest, Father O'Conner, who will be at the hospital at the time of delivery for immediate Baptism. We have also bought burial plots for Claire, Tammy, and I, as well as an extra one (we may not like having neighbors real close to us, ha-ha). If you have not done this, I highly recommend it. It was a very difficult decision as to where to go, mainly because this is the ONLY decision in your life that will be permanent. But it is a comforting feeling, and enjoyable (although Tammy did not see it like this). Although our situation will be changing from hour to hour, we feel like we have addressed any possible scenario and are prepared for it.

We want to thank our family and friends for all of your support. We get excited each time we log onto this blog spot and read the comments you have left for us. They have been very uplifting for us and have helped us immensely through this difficult time. Many of you have asked if we mind if you send our site on to someone else, and of course we do not mind, we need all the prayers and support we can get. We will update this tomorrow as soon as possible.