A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Thursday, September 21, 2006


Well, well, well...... You will all have to put up with my bad English and poor spelling if you wish to keep up to date with the happenings of Our delightful Claire. Our intent is to post all kind of "diary" type info here, (two to three times a week)that we would like to share. If you find something interesting in this blog, and would like more details, please do not hesitate to call us. We are only using this technology as a way to bring you up to date, without having to tell our story 8 to 10 times a day.

The official "kick off" of this blog is going to be the day we actually bring Claire home from the hospital. We understand, and want you to understand, that this is already a long shot. The projected life of children diagnosed with Trisomy 18 is usually hours to days. Until then, we will post periodically just to let you know our thoughts and feelings as Claire's arrival approaches.

Just to get you up to date from the beginning: We first learned something may be wrong with Claire when we got the results back from a blood test done early during our pregnancy. It told us the odds of our baby having trisomy 18 was 10:1 (it usually comes back something like 3000:1). We were given the option of terminating (aborting) the baby at this point, but for us, that was just not an option. Although we prayed and held out all hope that our little Claire would still turn out perfect, we knew that if something was wrong, God would have some master plan that we may not understand, but will indeed have some purpose. Well, as time went on, more and more test came back that still indicated possibly Trisomy 18. The physicians wanted us to do an amniocentesis early on, but since this can increase the possibility of causing early labor, and even miscarrying, we decided against it. We felt like regardless of the results of the test, there was just nothing that could be done to correct the problem.

We continued to pray, and unfortunately we continued to get back bad results. Next we found out that Claire has a very bad heart condition call a ventricular septum defect (VSD), and possibly worse, something called Tetrology of Felot. We also found that Claire has her little fists clinched up very tight and in a very awkward position, which is also seen with Trisomy 18.

We finally gave in and had a amniocentesis done, which came back 99.9% sure she indeed has trisomy 18. That is still OK, we continue to pray for healing, or understanding as to why or what God's purpose is in this matter. We, or You, will indeed learn something from this, and will be much better off at some point.

23 Comments:

  • At 12:47 AM, September 24, 2006, Anonymous Anonymous said…

    We're praying for you guys.

    Matt, Ginny, & Eliot Mooney
    (www.mattandginny.blogspot.com)

     
  • At 4:40 PM, September 27, 2006, Anonymous Anonymous said…

    Our thoughts and prayers are with you all.
    John, Sheryl, Hayden and Mary Graf

     
  • At 8:06 PM, September 27, 2006, Anonymous Anonymous said…

    Tammy and Billy:

    Claire and you are in our thoughts and prayers. It's said that children are a reflection of you, mom and dad. Every moment we have with our children should be one of joy and wonder. I know that you feel you will have those special moments with Claire.

    John and Kathy

     
  • At 12:59 AM, September 28, 2006, Anonymous Anonymous said…

    your story has touched my heart and I will be praying for you and your family. I know how God can speak to you at Jh ranch it is loud and clear. God is so awsome and I know he has a plan for your family.

     
  • At 8:08 AM, September 28, 2006, Anonymous kellyadger@bellsouth.net said…

    Billy and Tammy-

    You all are in my thoughts and prayers - I am amazed by the strength you both have - as someone very close to me once said..."Rest in the Lord"

    Kelly Mixon Adger

     
  • At 8:19 AM, September 28, 2006, Anonymous Anonymous said…

    I thank God for your witness to all who hear your story. I know Claire will be a blessing to you regardless of her life span; but I pray for her complete healing.
    Kim (Carrie's aunt)

     
  • At 2:39 PM, September 28, 2006, Blogger Jolie Becker said…

    Our thoughts and prayers are with you today and in the weeks to come. Thanks so much for sharing this.

    The Beckers
    Tim, Jolie, Brittany and Dalton

     
  • At 9:12 AM, September 29, 2006, Anonymous sjon_harless said…

    Tammy and Billy,
    You and your family are in our prayers. What a beautiful name you have chosen for your new little girl. I know every moment with her is precious. Enjoy them they a gift from god! Sjon and Jamey

     
  • At 10:04 AM, October 02, 2006, Anonymous Anonymous said…

    Tammy and Billy

    We are praying with you for Claire and your entire family. Your faith is such an inspiration.God bless you and especially Claire.
    Love, Kevin and Cindy Presley

     
  • At 12:19 PM, October 02, 2006, Anonymous Anonymous said…

    mr. cox,i don't know you but i know your lovely daughter carrie..you, your wife and claire will be in my prayers..god bless you..

    ~Elaine

     
  • At 2:32 PM, October 02, 2006, Anonymous Anonymous said…

    Tammy-

    You have always been one of the strongest individuals I have ever met and I have always admired you for that strength. God gave you that strength. You have used it well. I will keep your family in my prayers.

    Tracey Meacham Gann

     
  • At 4:33 PM, October 02, 2006, Anonymous Anonymous said…

    Dear Tammy & Billy,
    I will be praying for you and your family - especially little Claire. Your faith is so amazing.
    Love & Prayers,
    Kym Little

     
  • At 8:38 PM, October 02, 2006, Anonymous Anonymous said…

    Tammy and Billy:

    We love you and are praying for God's sustaining grace to continue to strengthen you during Claire's birth. She's a precious little one and will touch all of our lives. Thanks for letting us share in this time with you.

    Much love,
    Matt and Cathy Young

     
  • At 9:13 PM, October 02, 2006, Anonymous Anonymous said…

    Billy and Tammy,

    Prayers from Florida, What a great name you have chosen. You are about to meet an angel. Godspeed


    Alfred Wacker & family

     
  • At 10:10 PM, October 02, 2006, Anonymous Anonymous said…

    Praying God s strength for the family. Trusting our Lord will be with you. Lots of Love Joet

     
  • At 11:14 AM, October 03, 2006, Blogger Jennifer said…

    Our thoughts and prayers are with you this morning. Claire is truely a miracle. She has touched my family in so many ways. She is turely an angel.
    God bless you,
    Jennifer and Tony Hoffman

     
  • At 11:32 AM, October 03, 2006, Anonymous Anonymous said…

    Billy and Tammy,
    Our prayer is to uphold you before the “One who is able to do exceedingly, abundantly above all we ask or think, according to the power that works in us, to Him be glory." You two are pure pleasure to know and we are thankful you are allowing us to tag along on this journey. Thank you for the joy you bring to our lives. We wait with anticipation for the joy Claire will bring – no matter how long or short that may be.

    Love, Brian, Freida & Sandi Dunlap

     
  • At 4:16 PM, October 03, 2006, Anonymous Alex and Mike Murphy said…

    What a beautiful picture of all of you together with Claire. So grateful for the report of her first minutes with her wonderful parents and sibilings! May all of you continue to feel the love so many of us have for you and your precious daughter Claire. She truly is a miracle, and we know you will all treasure these precious memories you are making. Sure puts everything else in perspective. We will continue lifting all of you up in prayer. . . . Alex and Mike

     
  • At 4:51 AM, October 04, 2006, Anonymous Anonymous said…

    Billy and Tammy ,

    Our prayers are with you at this time .
    Remeber God never gives you more than you can handle .I know you will get through this because your love for one another is very strong .Keep up the positive attitude and continue to turn to your faith and you will see this through . If there is anything I can ever do for you do not hesitate to call (251-463-2674)
    Our prayers are always with you .

    Henry & Marcia Barnes

     
  • At 7:24 PM, October 04, 2006, Anonymous Anonymous said…

    Tammy and Billy,

    What a beautiful family picture. This website is wonderful. Thank you for allowing us to share this experience with you. Claire is beautiful and truly a miracle. We love you all and will keep you in our prayers.

    Lori & Greg Bray

     
  • At 5:30 AM, October 05, 2006, Anonymous Rhonda Shea Mason said…

    Tammy,

    I always knew you were beautiful but now I know it comes from the inside. I pray for you and your family that God will give you exactly what you need. Thank you for sharing with us your Claire. She is beautiful and truly a gift. Know that I love you.

     
  • At 9:17 AM, October 05, 2006, Blogger Ron Lewis said…

    Tammy and Billy:

    Many thanks for sharing a very precious time in your family's life! Our thoughts and prayers are with you and the family! Claire is a very special gift and the time you share with her will be memories forever!!

    Ron & Joanna

     
  • At 12:25 PM, October 05, 2006, Anonymous ReGina said…

    Dear Tammy,Billy and family,
    You are all in my prayers and thoughts. Claire is a very beautiful little girl.
    She is so lucky to have such a wonderful family and support group.
    You'r dedication as parents is such a spiritual inspiration to us all.
    God Bless.
    All My Love,
    ReGina

     

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