A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Sunday, November 26, 2006

We have been discussing how thankful we are for so many, many reasons this holiday....and of course one of them would be our Claire. It is so amazing how you can feel two exact opposite feelings simultaneously! How could something so innocent and tiny make us flash from one emotion to the next? For instance, one of my highlights today was sitting on our living room floor playing with John, Emily, Katlyn, Billy & Camille; and there was Claire! It seemed so overwhelmingly wonderfully....normal. We were playing games, girls loosing horribly to the boys (they cheated) and we would pass Claire around to one another when it was our turn. Normal is defined as not diseased, to us, she is our norm;our standard, model and pattern. She is showing each of us in our family something so priceless, she is teaching us to set our standards high. To model ourselves in our faith and to pattern our actions not on what we see or feel, but rather on what we know and believe.

I enjoyed watching "The Bishops Wife" today on the old movies station. Cary Grant played an angel, who was sent to the Bishop and his family, and had such an impact on everyone. Everyone except the Bishop that is! This angel told the Bishop he was sent there for him, because he had prayed for guidance. It wasn't until the end the Bishop accepted this angel and received what he needed. I found it to be true in our life with Claire, each day embracing her and her life. For she was designed just as she is and brought to our family and even as hard as it is due to the fear or the unknown of her condition we are going to respond positively to this situation.

It's beginning to look a LOT like Christmas in Claire's house these days! We will post some pictures of her in the next few days of her decking the halls. She must be worn out from all of her holiday tasks because we finally had a good nights sleep last night.

Billy named this "A day in the life of Claire" and it is amazing how at the end of the day, there are not enough words to convey what her day was really about.

8 Comments:

  • At 9:46 AM, November 27, 2006, Blogger Somewhere over the rainbow said…

    Thanks for the update!! I am so glad that things are going well and memories are being made each and every moment!

    Can't wait to see the pics, I am sure Claire will be sporting a "fur" !!

    Lots of love and prayers,
    Roddy & Daphne

     
  • At 10:43 AM, November 27, 2006, Anonymous Anonymous said…

    You guys never cease to amaze me!!!You can always count on the Cox's to celebrate the holidays full speed ahead:) I'm so glad all was well, and even more excited for some sleep in the family. It makes all much happier campers. Looking forward to seeing pictures...they are too much fun!! And I'll bet Camille is so excited about Santa, and if I know you guys...Baby Jesus birthday! Hope to see you during the Holidays, but you know you are all in our thoughts and prayers. I know what a help John, Emily and Carrie are to you guys...it will be nice to have them with you during Christmas. We all send our love and hugs and kisses:) we check on you guys daily..so keep the blog going-it's a big topic of discussion with us and almost a competition as to who reads the news or sees the pictures first!!!
    We Love you!
    The Lipscomb's

     
  • At 12:04 PM, November 27, 2006, Anonymous rmpullen said…

    Tammy - when Claire is finished with your house - can you send her to mine to decorate? - I need all the help I can get:)
    Glad to hear everyone is getting "a little" sleep. Hope to see you soon. Rhonda

     
  • At 1:00 PM, November 27, 2006, Anonymous Anonymous said…

    It has been so wonderful knowing how things are going and that Claire is a true Cox in every way...Strong, beautiful and a contagious beautiful spirit which inspires everyone around her. She is truly a gift from god. I have you in my prayers constantly and am so thankful for every blessed day you can share with all of us.

    Love,

    Cindy Ankersen

     
  • At 8:07 PM, November 27, 2006, Anonymous Anonymous said…

    I prayed for Claire last night...for God to provide her with peace and rest. I will continue to pray for your family as you continue to inspire mine.
    Lisa

     
  • At 3:50 PM, November 28, 2006, Blogger Kim said…

    I love that movie,too!

    What a wonderful outlook you have on Baby Claire's precious life. God did create her just as she is...who are we to know what is right and perfect....we have such a small frame of reference on such things.But,God has a perfect plan. Have fun decorating your home for Christmas...we have been doing a little of that ourselves! God bless you all!

    We are praying for you still and will continue--your journey must be very difficult,but God will help you through it.

     
  • At 3:17 PM, November 29, 2006, Blogger KT said…

    So sorry for your loss. I have kept up with sweet Claire through Eliots web site. You are in my thoughts and prayers through this difficult time. How cute are Eliot and Claire dancing at the feet of our sweet Jesus. Press on Cox family.

     
  • At 8:15 PM, October 02, 2007, Anonymous Anonymous said…

    mammy i love and miss clair!!

     

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