A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Tuesday, November 07, 2006

No real news here. We think Claire continues to struggle to breathe, but she continues to have "easy" times intermittently. She is now up to 4lbs even. This is the weight they initially wanted her to be at before they would let us come home. So thankfully we have had a "bonus" month at home! The last couple of days (over the weekend), we felt she was looking extremely tired and peak. We called in Nurse Sherri on Monday, and by the time she got here that afternoon, Claire had started looking and sounding a lot better. Even the nurse said today was the first time she was able to note on her chart that by her being so alert, she was moving both hands and feet together and was showing reflexes. She thought Claire was quite alert as did friends Rachel and Michel that had stopped by.

Claire still does not suck or take a bottle, however, Nurse Sherri told Tammy to put a sucker in her mouth, and Claire loved it !! (you know Tammy loves her sweets, and of course wanted to make sure Claire would be able to enjoy this benefit of life). We are going to continue trying this, along with adding flavor to her pacifier, in hopes we can teach her how to take her bottle. Tammy is also glad she will be able to enjoy the "finer" things in life, SWEETS.

6 Comments:

  • At 10:24 PM, November 07, 2006, Anonymous Anonymous said…

    Four pounds!! That a girl Claire! I knew you'd do it. I look forward to logging in and checking in on you and your family every day. Keep up the good work and try out those SWEETS, you'll love 'em!
    Prayers and hugs,
    Sheryl

     
  • At 2:02 AM, November 08, 2006, Anonymous april said…

    giving her suckers will just make that angel-girl that much "sweeter"! ;) still praying for you all!

     
  • At 7:31 AM, November 08, 2006, Anonymous Anonymous said…

    I loved meeting Claire this week!Words can't describe how precious she is...look forward to seeing her again very soon. Tammy, you look fabulous and you are such a wonderful mother. Our prayers continue for you all,including your mother.

    Love, Diane Gilmore

     
  • At 1:05 PM, November 08, 2006, Anonymous Anonymous said…

    We are so excited about the update on Claire and her love of sweets...again,justlike her mommy. We are sorry we haven't gotten to visit more although we hope to see you very soon. Kiss your sweet girls for us and know that we continue to think of you and you are always in our prayers.
    We love you
    The Zoghbys

     
  • At 3:23 PM, November 08, 2006, Anonymous Kim said…

    I'm so glad Claire can enjoy the sweets,along with her mommy. I never could get the pictures to work. ( : I will continue to pray for you guys. It sounds like you are taking really good care of that little angel. God knew just the right family for Claire. Continue to perservere.

    Congrats on 4 pounds!

     
  • At 9:03 PM, November 08, 2006, Blogger jennifer said…

    Tammy, you have a beautiful angel.
    You have been in my thoughts and prayers for several weeks now and will continue to be. Just know God will hold and carry you! Cherish every precious moment just as I did with my angel!
    Love and Prayers,
    Jennifer
    (Noah's Mom)

     

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