No real news here. We think Claire continues to struggle to breathe, but she continues to have "easy" times intermittently. She is now up to 4lbs even. This is the weight they initially wanted her to be at before they would let us come home. So thankfully we have had a "bonus" month at home! The last couple of days (over the weekend), we felt she was looking extremely tired and peak. We called in Nurse Sherri on Monday, and by the time she got here that afternoon, Claire had started looking and sounding a lot better. Even the nurse said today was the first time she was able to note on her chart that by her being so alert, she was moving both hands and feet together and was showing reflexes. She thought Claire was quite alert as did friends Rachel and Michel that had stopped by.

Claire still does not suck or take a bottle, however, Nurse Sherri told Tammy to put a sucker in her mouth, and Claire loved it !! (you know Tammy loves her sweets, and of course wanted to make sure Claire would be able to enjoy this benefit of life). We are going to continue trying this, along with adding flavor to her pacifier, in hopes we can teach her how to take her bottle. Tammy is also glad she will be able to enjoy the "finer" things in life, SWEETS.