A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Thursday, November 02, 2006

Claire is sleeping better today than she has slept before, mainly because she has never worked as hard as she did today. She spent 5 hours with our photographer friend, Laura Courtney, doing an exquisite photo shoot. This is a preliminary sampling of Clarie's hard work. Click on http://www.lalaportraitsgallery.com/claire/ (be sure to scroll to bottom and click "view full screen" as well as turn up your volume). It is hard to look at this peaceful, sweet little angel and realize just how sick she is. We hope you enjoy it as much as we have, we have never been more proud of our little miracle! What an ANGEL......

20 Comments:

  • At 1:07 AM, November 03, 2006, Anonymous Anonymous said…

    She is absolutely beautiful.

     
  • At 7:02 AM, November 03, 2006, Anonymous Anonymous said…

    Dear Tammy and Billy, Claire is so precious. The pictures took our breath away. Camille was so sweet also.Thanks for sharing the pictures. We think of you all daily and continue to pray for all of you.Hope to see you all soon.

    Cindy and Kevin Presley

     
  • At 7:12 AM, November 03, 2006, Blogger Somewhere over the rainbow said…

    Oh my....what beautiful pictures!
    They are breath taking! What a precious family! Sending {{{HUGS}}} and prayers to you all!
    With Love, Daphne

     
  • At 8:03 AM, November 03, 2006, Anonymous Anonymous said…

    Your pictures are so beautiful we had to write. We enjoyed spending time with all of you Tuesday. We continue to pray for your family and will hope to see you soon.

    We Love You
    Mark and Ceil

     
  • At 9:49 AM, November 03, 2006, Anonymous Anonymous said…

    She is beautiful! What a wonderful collection of photos for y'all to have!

     
  • At 10:29 AM, November 03, 2006, Anonymous Anonymous said…

    Wow! What a beautiful family! Tammy, you and Billy are a true blessing to all of us that log on to Claire's site. Your example of faith, strength, and trust that you have in the Lord is so very inspiring. I am amazed everytime I log on to this site. Please continue to know that all of you are in my daily prayers, as well as your mom.

    May God continue to bless everyone of you.

    Jane Martin

     
  • At 11:11 AM, November 03, 2006, Anonymous rmpullen said…

    BEAUTIFUL! Just Beautiful! Camille and Claire look so precious. Hope you see you soon. Rhonda Pullen

     
  • At 12:58 PM, November 03, 2006, Anonymous Anonymous said…

    Billy & Tammy,

    I have to say, those are the most beautiful pictures I have ever seen! Kudos to Laura Courtney for a job well done! This is only the second time I have posted a comment, but I am a faithful "viewer" of Claire's blog. I visit her site daily (Eliot's too) and I ask Rachel about sweet Claire EVERY time I talk to her, which is quite often. I will continue to keep you ALL in my prayers.

    Dorene Emmons

     
  • At 2:11 PM, November 03, 2006, Anonymous Anonymous said…

    Wow - she is truly amazing! I am so touched by these pictures...your family is so precious. Claire is a little angel and Camille looks like a porcelain doll! Can't wait to see you all very soon. The pictures are beautiful! Thank you so much for sharing with us all.

    Diane Gilmore

     
  • At 8:30 PM, November 03, 2006, Anonymous Anonymous said…

    Beautiful, beautiful family.

     
  • At 9:36 PM, November 03, 2006, Anonymous Anonymous said…

    Tammy and Billy,

    I just wanted to tell you how beautiful your baby is. We have reading her web sight since she has been born. I have tried to respond on the blob several times but for some reason...I am computer dumb... I cannot do it.

    We have enjoyed following Claire's progress and growth as we watch her in the pictures and read the updates. I cannot begin to explain how Claire has touched our lives. She reinforces the power of prayer, she gives us the power to believe, and shows us the true meaning of love in a family. You all are the most remarkable people through this and an inspiration to everyone. Thank you for the wonderful gift.

    We continue to pray for Claire and you all as your journey continues. What a ride it has been I'm sure. I hope to see you all soon, at Bunko if not sooner (Don't ask me how I got on bold...please ignore...duuuuu!!!)

    Claire - you are beautiful in every aspect of the word. Thank you for giving us the power to believe and know that love and prayer can conquer. Thank you for you and we look forward to watching you grow!! God Bless!!!

    Emily and Robert Petro

     
  • At 12:50 AM, November 05, 2006, Blogger Kris said…

    She is gorgeous! I love the pics of her eyes open. What a beautiful little doll! Camille is very beautiful, too!

     
  • At 4:25 PM, November 05, 2006, Anonymous Anonymous said…

    Billy and Tammy,
    Thank you for continuing to share Claire's sweet life in words and in pictures.

    I love the capablilty to blog-in and check up on all of you!
    Love,
    Laureen Lynn

     
  • At 8:31 PM, November 05, 2006, Blogger Pam in Colorado said…

    Thank you for sharing Claire's and your story with us. Both your daughters are beautiful!

     
  • At 9:19 PM, November 05, 2006, Anonymous Anonymous said…

    Very nice pictures that will always be a treasure for your family. PRAYING for your family lots!!!!!!!!!!!
    Lisa in S.C.

     
  • At 6:51 AM, November 06, 2006, Anonymous Anonymous said…

    Billy & Tammy,

    A picture is worth a thousand words.These pictures say a lifetime of words !! Prayers from Florida.

    Alfred Wacker & family

     
  • At 7:10 AM, November 06, 2006, Blogger Somewhere over the rainbow said…

    Just logging on to send you all a great big [[[hug]]] and letting you know that you all are in our prayers and thoughts daily!
    His Love & Mine,
    Daphne

     
  • At 9:19 AM, November 07, 2006, Anonymous Anonymous said…

    I found your blog through Eliot's and I must say that I truly believe God has blessed you immensely by sharing this precius miracle with you. Claire is so precious and I am thankful that she was sent to a family who is loving her and celebraing every minute of her amazing life. I was pregnant with twin girls, delivered at 24 weeks, lost our sweet Sarah at 13 days old, and spent 96 days in the NICU with our miracle, Emma. It was the most challenging journey I could have ever imagined. Emma is doing great now and we praise Him for every moment. God bless you and your family and know that above all things, He holds your sweet Claire in His loving hands and will carry you all through this journey.

     
  • At 8:49 AM, November 08, 2006, Anonymous Anonymous said…

    She is beautiful.

     
  • At 7:29 AM, November 11, 2006, Anonymous Anonymous said…

    Dear Billy and Tammy, we just heard about the birth of your beautiful daughter Claire. Your family is such an inspiration. We will keep you in our thoughts and prayers.

    Kathy and Glenn Mathers

     

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