A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Thursday, November 09, 2006

Enlighten my eyes of understanding that I may see YOUR face in this pitch like darkness.... If you look up understand it is defined as to get the meaning of, know well; know HOW to deal with, be informed, take as a fact; BELIEVE. Well, I feel we have worn this verse out in our prayers!
As hard as this is at times, it truly has been equally balanced with positive events. We are so humbled by the support and encouragement we have received that it somehow makes the hurt seem to subside. Just like yesterday for instance, the weather was perfect and we decided to happen in our familiar stomping ground of Heron Lakes, and what we experienced was overwhelming. Besides the pumpkin patch, it was our first outing with Claire; especially to eat. Everyone there came up to us and you could truly feel the love and support, and some of these people we didn't even know but they have been keeping up with Claire through this blog site. Boy it sure makes us feel much better when feel this kind of support. We know we have support like this, it was just amazing to see it first hand. THANKS to all.

My Mother came home yesterday, with round the clock care....but home at last! She literally dove into her bed as soon as we got there and said with a smile; it's so good to be home and in my own bed. Now we can go and take the girls to hang out and allow Mother to get to know her miracle granddaughter. What a wonderful moment it was as they got to meet....something we feared may not have happened. Another thankful day....

4 Comments:

  • At 4:13 PM, November 10, 2006, Anonymous Anonymous said…

    What a wonderful family and support group you have. My name is Jennifer and I was turned on to your site by a mutual friend of ours.. Robert Ross. I live in Houston and wanted you to know that myself and a lot of others here have been praying for your family, thru the church and our own seperate Bible study groups. I started reading your blog before Claire was born.. so the prayers have been coming along for a while now!!!!! I can feel the love when I read your blog, and it just makes my heart melt. Claire is such a strong little girl, and God has blessed ya'll with an angel for LIFE. Thanks for sharing your site & story with soooo many!
    Jennifer Kuhn
    babbyhomepages.net/babykuhn

     
  • At 10:31 AM, November 11, 2006, Anonymous april said…

    that's wonderful! i'm sure those are memories your mother will cherish. what a blessing Ms.Claire is to so many people!! prayers going up for all of you!

     
  • At 4:09 PM, November 12, 2006, Blogger MaliMai & Beau - On Our Way To Russia said…

    Answered prayer with Mom and Claire home together! Blessings!

     
  • At 4:21 PM, November 12, 2006, Anonymous Kim said…

    Please know we are still praying for your family.It must be hard not knowing what each day will bring with little Claire. May God bless your journey. I'm glad to hear your mother is doing well and home from the hospital. That was an answer for prayer for you guys. I don't know the details about your mother's illness,but I have prayed for her as well. So glad she and little Claire can spend time together.

     

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