A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Tuesday, October 10, 2006

Well, here we are at one week old and I don’t know where to begin. I have moments that I am so overwhelmed with the what if’s that it almost paralyzes me. Then I realize I truly do not know how this will all work itself out and the details I need to leave in God’s hands. I remind myself that “ALL of Claire’s days were ordained by Him,” and a sense of relief floods my heart. Billy and I have been in total agreement since the diagnosis that we are going to handle this with arms wide open, with as much joy as we can muster, and obtain all that we can from this journey.

I am surprised, the toughest times SO FAR seem like hiccups. For that I am thankful. Everywhere we turn, we truly do see a divine plan unraveling. My faith has been so bleak at times, but isn’t it amazing that He said it takes only the size of a mustard seed and POW, look what He will go and do in return! If you would have told me a week ago that I would be strolling with my husband and little baby around my neighborhood, I would’ve thought you were silly. I wouldn’t want this situation for anyone, BUT we ARE each given difficult or trying situations; and are any really any worse than the other? I look around me and think WOW; this is nothing in comparison to …

Being married to my husband has been my greatest achievement in life so far, and I can confidently say I understand why God said it is better to be together than alone because you have a good return for your work. If one falls down, the other will pick him up. I think we get so busy running our own race that we forget what our true destiny is. We have a 3lb 4oz angel that is created from love and when she locks eyes with me or smiles at me as she’s beginning to do, nothing else seems to matter. The “what if’s” melt away and we are so overcome with emotion that we are able to experience her in a way that I thought would never be possible. Isn’t that what being a parent is about?

Thank you again for all the wonderful emails and for joining us on our trip with Claire. I only thought it was an honor to carry her for 9 months, to think how sick her little body is and she has fought like a champ to be here.
Being the Rolling Stones fan that I am, ole Mic was ever so right when he belted out “You can’t always get what you want, but if you try sometimes, you might just find, you get what you need.” Our family indeed needed Claire.

17 Comments:

  • At 11:05 PM, October 10, 2006, Anonymous Lisa said…

    Claire and Eliot have been in my thoughts and prayers so much the last few days. They both have amazing parents. I came across little Eliot quite accidentally on the internet and then to little Claire through Eliot. But is anything "quite accidental" where God is concerned??? On Sunday we celebrated my youngest son's first birthday. We awoke to a very cloudy, yucky looking day that was possibly going to prevent us from having our outdoor party I had planned. For a few seconds I have to admit that I was irritable about the weather, irritable that MY plans were maybe going to be ruined, irritable that an alternative plan was going to have to be made. Then I thought about these 2 precious babies, these 2 precious lives and I reminded myself very quickly how ridiculous it is to concern myself with the weather. I know this story is very small in the scheme of things but I just wanted you to know that YES, YES, YES, YES these babies are touching people's lives, making an impression and glorifying God. My prayers are with BOTH families and BOTH little God-given angels.
    Lisa Lowery
    South Carolina

     
  • At 11:08 PM, October 10, 2006, Anonymous Anonymous said…

    Wow, that quote from the rolling stones fits perfectly! I never knew how something like this could change my life in so many ways! She really is amazing in so many different ways and has done wonders for my life.
    I love and miss yall
    John

     
  • At 5:56 AM, October 11, 2006, Anonymous Anonymous said…

    Way to go , just shows you that anything is possible.
    Keep up the great attitude and faith and you will surely be blessed .Remeber all things happen for a reason .
    Keeping all of you in our prayers .

    Henry and Marcia Barnes

     
  • At 8:37 AM, October 11, 2006, Anonymous Anonymous said…

    Hi Billy and Tammy, It is a pure miracle that Claire has made it this far!!! What a joy it is to hear the great news and how yall have been so strong for each other and for everyone else. I have a daughter that had a birth defect also and I agree with Tammy about ol' MIc's lyrics. He gives some of us special Angels to care for. Our prayers are with your whole family!!

     
  • At 8:56 AM, October 11, 2006, Anonymous Anonymous said…

    It is great to hear you are home and enjoying strolling your sweet angel. We think of you all every day. May God continue to bless you all in evey way.

    Cindy and Kevin

     
  • At 8:57 AM, October 11, 2006, Blogger amy said…

    Hi Claire,

    I am Eliots Aunt Amy. I wanted to say welcome to the world and let you know that I dont think that Eliot could have found a more beautiful young lady inside and out than you. You have a wonderful family that loves you so much and like Eliot, your loving family is extending beyond what you know. Like your family, I strongly believe that God is capable of doing far above what we know and expect and all for his glory. I am thankful that he allowed your family to experience your life in the way that he perfectly designed you to be. Ill be checking your blog for updates.

    Already loving you,
    Eliots Aunt Amy

     
  • At 9:45 AM, October 11, 2006, Anonymous Anonymous said…

    Good Morning Cox family! Please know I'm continuing to lift you all in prayer, Try to rest when you can during this transition home. May God give you His strength, power and love! Eliot's friend, Olivia Condrey

     
  • At 12:12 PM, October 11, 2006, Anonymous Anonymous said…

    BEAUTIFUL CLAIRE

    Fleeting moments -
    like a shooting star,
    you beat the odds
    and made it this far.
    Sent by God
    as a gift to share,
    So that all may know
    the true power of prayer.

    Your fisrt day on this earth,
    and you've inspired us all.
    The true meaning of life
    and perhaps Gods call.
    With real love and devotion,
    your parents endure
    the hope for a child,
    the hope for a cure.

    With moments of joy
    and surely some grief,
    your parents have shown all
    the gift of belief.
    In one stronger than us,
    who will shine the way;
    The One they depend on
    for just one more day.

    So heres to you all,
    and our Maker above;
    thank you for showing us
    the true meaning of Love.

    Uncle David, Aunt Lee Anne and kids

     
  • At 2:02 PM, October 11, 2006, Anonymous Anonymous said…

    To Billy,

    I want to tell you how grateful I am for you. From all that I have seen Tammy walk through all her adult life, her strength has been amazing! I mean amazing! Her mother brought her up to totally depend on the Lord and oh the heritage her mom passed down to her. But oh what a blessing to see my bestfriend whom I admire and that has always been a strength and rock for me, have someone, especially you come along and be to her what she has been to so many people. I believe, with all of my heart, you are a gift from God "for such a time as this". Thank you Billy from the bottom of my heart for loving, protecting and caring for Tammy like you have. What the Lord so knew she needed long before she knew you! I love you all, Marty

     
  • At 8:10 PM, October 11, 2006, Anonymous Anonymous said…

    Billy & Tammy,
    You guys hang in there and enjoy every second with Claire. You have truly met an ANGEL on earth. These are the Lyrics to the song by Lionel Ritchie " Angel"
    Prayers and Love from Florida

    Alfred Wacker & Family


    I just want to tell you all the things you are
    And all the things you mean to me


    When I find myself believing there's no place to go
    When I feel the loneliness inside my heart

    You're the answer to my prayers
    And you're with me everywhere
    You're my angel, miracle, you're all I need tonight
    Give me shelter from the rain
    You breathe life in me again
    You're my angel, miracle, you're all I need to know, tonight

    Life is just a moment
    We're blowing in the wind
    We're trying to find a friend
    And only time can tell us
    If win or if we lose
    And who will stand beside us

    When there's darkness all around me
    You're the light I see
    When I need someone to ease my troubled mind

    You're the answer to my prayers
    And you're with me everywhere
    You're my angel, miracle, you're all I need tonight
    Give me shelter from the rain
    You breathe life in me again
    You're my angel, miracle, you're all I need to know, tonight

    You're all I need tonight
    All I need tonight
    All I need tonight
    You're my angel

    You're the answer to my prayers
    And you're with me everywhere
    You're my angel, miracle, you're all I need tonight
    Give me shelter from the rain
    You breathe life in me again
    You're my angel, my miracle, you're all I need to know, tonight

     
  • At 10:05 PM, October 11, 2006, Anonymous Anonymous said…

    A baby is God's opinion that the world should go on. ~Carl Sandburg

    This quote is very inspiring to me.Claire Cox was sent from God to you guys! WHAT A MIRACLE!

     
  • At 8:36 AM, October 12, 2006, Anonymous Anonymous said…

    You remind me that who we are is "not of body " , but "of the soul".How easily we forget that .Thank you for reminding me ,and thank you so much for sharing Saint Claire with us .
    Peace be with you .

     
  • At 8:38 AM, October 12, 2006, Anonymous Anonymous said…

    As I continue to read your blog everyday, I can't help but reflect on my own life and how much my focus needs to change. Claire IS an Angel sent by God, here to touch ALL of our lives. (She has REALLY touched mine.) I see your faith Tammy, and Billy's strength and realize that those things we all worry about on a daily basis really don't matter much at all in the BIG picture. I can't tell you how much of an inspiration the two of you have been and I pray every day for beautiful little Claire. God definitely has a plan for her, and only time will reveal what it is. God Bless (I think he already has!).

    - Michelle, Jim and Maddie Langley

     
  • At 9:06 AM, October 12, 2006, Anonymous Anonymous said…

    Tammy,
    Your words are...well..there are no words. Thank you for sharing your thoughts, challenges and faith. No only did your family need Claire, but mine did too. It has opened up many lines of communication and paved a path filled with renewed love. Often we take things for granted. It has made us STOP and be thankful for life itself!!! Thank you SO much, Alesia Murphree

     
  • At 10:06 AM, October 12, 2006, Blogger Debbie Rice said…

    Your Wedowee friends have certainly been inspired by your courage, faith and love. Not only are you blessed with your precious Clair, you are blessed with friends and family beyond imagination. You are in our thoughts and prayers thru this jounney and beyond.

     
  • At 3:05 PM, October 12, 2006, Anonymous Anonymous said…

    Dear Billy,
    David shared your Blog site with us. I am a novice when it comes to blogs and a pro with e-mail ,so here is my e-mail to be shared with Tammy. I was very touched by all the comments others made. It really renewed my faith in human nature. I appreciate David including us in on the news of you daughter.
    God works in mysterious ways, “doesn’t he?” As painful as this news was for me to read and how it must have been significantly harder for you and Tammy, the way you and Tammy have approached the situation and handled it has been amazing. It is obvious to me that you have real love in your life and that you both realize that. I would guess that everyone who has read the blogs may have reacted the same way as I, in pure admiration of you two and your family. Hopefully everyone is doing the same as I and realizing how blessed we all are. If I can be of any help please let me know. I did discover there is a Trisomy 13 and 18 Foundation website www.trisomy.org Both Ramine and I will make a donation in Claire’s name. Our prayers and thoughts are with you and your family.

    Ms. Tamsin Ettefagh

     
  • At 12:32 PM, October 13, 2006, Anonymous Anonymous said…

    Tammy,

    I knew you were an amazing, giving, and loving person the first time I met you many many years ago. Words cannot express what I feel about you and Billy. I just want you to know that I admire your character, strength, and faith. You are awesome...that's why God chose you and Billy to take care of his special angel. Claire is beautiful!!
    Love you,
    Melody

     

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