A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Thursday, October 26, 2006

On Tuesday, we had Claire's 21st birth(day). We had some of our friends and family over to not only show off Claire, but also to celebrate her life. Along with her celebration, we also decided to have a pumpkin carving contest. I can't speak for anyone else, but for Tammy & I, we had a blast. It was great to see people we had not been able to see for a while, and wonderful to "try" to act regular, or normal, even if it was just for a few hours. We had nurse Sherri on hand to help with the little angel. Thanks to all who came by, as it was great for us. We also apologize to many who we just could not invite, but would have loved too.

Claire has grown to a whopping 3 lbs 10 oz. This is GREAT! As we have been warned that many times Trisomy-18 babies have a "failure to develop" or grow. And so yet another miracle! Claire continues to have her most difficult time of the day between midnight and 4am (daily). During this time, we try to hold and caress her the entire time.

Ms. Elmore is doing as good as could be expected. She will probably stay in intensive care for 5-7 days more, but hopefully will continue to improve each day.

6 Comments:

  • At 6:57 PM, October 26, 2006, Anonymous Anonymous said…

    Happy 21st B'day Claire!



    John, Brandy, Saylor, Sarah Bolding and Hufton Parker

     
  • At 8:02 PM, October 26, 2006, Anonymous Anonymous said…

    HAPPY BIRTHDAY CLAIRE!Your pumpkins are adorable! HOW CUTE!What a miracle!

     
  • At 7:39 AM, October 27, 2006, Anonymous Anonymous said…

    Another blessed day for the Cox family!
    The Rice's

     
  • At 12:10 PM, October 27, 2006, Anonymous Anonymous said…

    Happy 21st Birthday Claire! What a wonderful celebration!! We know that there will be many more to come, as well!

    Your entire family has been in our thoughts and prayers. The messages we read have been such an inspiration to the entire family each and every day! Please know that we are all rooting for you each and every day!

     
  • At 6:38 PM, October 27, 2006, Anonymous Anonymous said…

    Dear Cox Family,
    My thoughts and prayers are with you .Please let me know if there is anything I can do for you. You are very lucky to have this beautiful little girl. Happy Birthday Claire!!
    Love,
    Linda Paravicini

     
  • At 10:55 PM, October 27, 2006, Blogger On Our Way To Russia said…

    God Bless all of you! Glad Claire had a wonderful 21st as did Mom and Dad. :) WE're praying.

     

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