A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Saturday, October 21, 2006

Eighteen days and still rockin on! Little Claire has had a few rough moments, but nothing to alarming. She continues to get stronger, although that is hard to determine. She has started to cry more, and it still sounds like a small cat purring. Her lungs just aren't very strong. We continue to try to hold her anytime she is awake, but we feel she is becoming a bit spoiled [I guess that's what she should expect, since she accidentally overheard us talking about it :-) ]. A friend of ours (Lelong) gave us a specially designed shirt for moms to wear to allow premature infants the comfort of feeling close to their mother and staying warm. Claire (and Tammy) find great comfort in this, as it also allows Claire to feel and hear her mom's heart beat as she had for 9 months.
Claire seems to have her days and nights mixed up too, so we hold her most of the night, and leave her in her incubator some of the day.
Please continue praying for us all, as Claire's breathing has started to bother us a tad.

7 Comments:

  • At 11:55 PM, October 21, 2006, Blogger Matt Mooney said…

    Congratulations Claire...18 days! The shirt sounds great. Just wanted to let you know that you all are still in our prayers. She's a special girl.

    Matt, Ginny, & Eliot Mooney

     
  • At 8:29 AM, October 22, 2006, Blogger On Our Way To Russia said…

    Sounds like the best medicine! We're praying for you and your dear family. Do you have a picture of Tammy holding Claire in the shirt? Or is it one of those you don't post. Anyway, it sounds wonderful for both of them. God Bless! The Terrells

     
  • At 3:32 PM, October 22, 2006, Anonymous Anonymous said…

    I continue to check Claire's site several times a day now, as it brightens my whole day to see the most up to date miraculous work of our Lord, through Claire. We are all so blessed for another day and we continue to pray for you all. I also got to see little Eliot today too for the first time...what a cutie! Words can't describe how touched I am by these two precious children...thank you for sharing with us all. We love you all and continue to pray.

    Diane and Scott

     
  • At 4:52 PM, October 22, 2006, Blogger Kim said…

    It sounds like you all are having some very sweet and tender days(and nights) with your sweet special baby. Just know we are praying for you. I know you must be exhausted. Claire and Elliot's stories are remarkable because of the beautiful way the parents have responded to their lives. It is an example to parents everywhere!

    Kim

     
  • At 10:24 PM, October 22, 2006, Anonymous Anonymous said…

    Way to go Claire! You and your family are true inspirations! I love to read about you and what's going on in your life. Please keep all those pics coming. Glad to know you like pink just like my Mary Graf! Continued prayers for a special girl and her extraordinary family.
    Sheryl Ethridge

     
  • At 10:37 PM, October 22, 2006, Blogger Peach said…

    You are all in our prayers daily. May God give you rest and touch your family with His strength.

    Thank you for sharing the updates with all of us. Claire is so precious.

     
  • At 8:38 PM, October 25, 2006, Anonymous Anonymous said…

    I just wanted You both to know that we are thinking about You and hope Your
    Mom does well during her surgery and that Claire is having a good day. LUV U
    GUYS>>>>Donna

     

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