A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Monday, October 23, 2006

Boy, life is indeed fragile! Just as Tammy & I were getting into our new routine with Claire, Tammy's mom became very ill. We had to admit her to the hospital last week, and they wound up taking her straight to intensive care. She had been sick with a virus of some kind, and when she could not shake it, she became dehydrated, or so we thought. Once she was admitted, we learned she had a "prolapsed bowel". As serious and painful as this sounds, we do not believe it to be life threatening. Ms. Elmore is having surgery Tuesday morning, so for now, between making the donuts every 3 hours (feeding Claire), we go visit her mom. Visiting hours are only 4 times a day for 30 minutes, so as you can imagine, our days are very occupied.

Claire still seems to be doing good, although as I mentioned before, sometimes her breathing is difficult, but it seems to get better after a while. We have a 21 day birthday party planned for Claire on Tuesday also, but due to her fragile state, we are only having a "limited" amount of guest. Watch for pictures of her "legal age" (21) party. We have decided her days are like years, and we have GREAT reason to celebrate.

Please continue your prayers, and include Ms. Elmore. As you know, Tammy has taken care of her Mom since her junior year in high school, so as you can imagine, this is a very difficult time.

10 Comments:

  • At 8:50 AM, October 24, 2006, Anonymous Anonymous said…

    I will keep your mom and Claire in my prayers. I hope all goes well with the surgery. Happy "21st" Birthday, Claire.

    Tracey Meacham Gann

     
  • At 9:46 AM, October 24, 2006, Anonymous Anonymous said…

    Hope is the thing with feathers
    That perches in the soul.
    And sings the tune
    Without the words,
    and never stops at all.
    by:Emily Dickinson

    love you all
    aunt Terri

     
  • At 9:48 AM, October 24, 2006, Anonymous Anonymous said…

    MY thoughtsa and prayers are with you and your mom and Happy Birthday to Claire.I LOVE YALL
    Kathy R

     
  • At 9:53 AM, October 24, 2006, Anonymous Anonymous said…

    I am so sad to hear about your mom.I know God will watch over her as He is watching over Claire and your family. You are in my prayers. Give Claire a very special hug for her 21st birthday and tell her it is from Ms Billie.

    Billie Meacham Sheffield

     
  • At 2:10 PM, October 24, 2006, Anonymous Anonymous said…

    Claire is so beautiful, as is her family. You are all truly an inspiration and I pray for you all every day. I am sorry to hear of Tammy's mom. I hope she's feeling better real soon. You all take care and I will keep Claire, Tammy's mom and all in my prayers.
    Happy "21" Claire.

    Kathy McFadden

     
  • At 7:26 PM, October 24, 2006, Blogger Kim said…

    You all are dealing with a lot right now. I will add Tammy's mother to my prayer list. You are a special family.

    Kim

     
  • At 8:24 AM, October 25, 2006, Anonymous Anonymous said…

    Happy "21" Claire! We keep you in our thoughts and prayers daily.
    Debbie and Butch Rice

     
  • At 2:03 PM, October 25, 2006, Anonymous Anonymous said…

    My brother was born with partial Trisomy 18 (we subsequently found out that my side, including myself, is a carrier of a chromosome 18 inversion). He's 10 now and he has the most precious and pure spirit there can be. It just shines through. Claire has that beautiful, precious spirit. She is truly so beautiful. The birthday was great. You all are in prayers.


    Jessie and Phil

     
  • At 8:40 PM, October 25, 2006, Anonymous Anonymous said…

    We just wanted you to know we are still praying for you guys. I'm really sorry to hear about Tammys mom. I will add her to our prayer list also. Let Claire know that our family wishes her a HAPPY 21st Birthday. We will keep praying for your family.
    Jenny, Paul, Christian and Morgan Poulos

     
  • At 8:48 PM, October 06, 2007, Anonymous sydney and courtney said…

    hey mammy i love you lol

     

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