A day in the Life of Claire

This spot is dedicated to the preparation and life of Claire Cox. Claire has been diagnosed with Trisomy 18, which is a genetic disease caused by an extra chromosome at the 18th spot. We know that God can cure Claire at any time, and continue to pray for this; however we also know that His Will, will be done!

Monday, October 30, 2006

Well, it was not a very good weekend around the Cox household this past weekend. You see, Claire's little friend from Arkansas, Eliot, passed away. Eliot lived to be just over 3 months old, which is longer than usual for many Trisomy-18 babies. This really made us realize just how precious each & every day is with Claire (heck, each hour).

Claire seems to be having more & more difficult times breathing, and it seems to last longer than before, she also seems to cry more than she use to (although it is still not very often, or very loud).

We want to thank you all for celebrating LIFE with us, and we hope you will appreciate one another just a little bit more today.

18 Comments:

  • At 8:32 AM, October 30, 2006, Anonymous Anonymous said…

    Good morning, Billy, Tammy, Camille, and Claire,

    I'm very sorry about Eliot, he was a beautiful boy, I went to see his pictures the other day. You're right,three months was really good...that's alot of special time. I do send my sympathy to them.

    Also just wanted to say I think about Claire everyday.

    Jessie Glass

     
  • At 9:22 AM, October 30, 2006, Blogger Kim said…

    Our family was sad over the news about Eliot. It is a heart break for them...although they have defintely trusted God through this,it still hurts! Just know we are praying for you guys and hope this grand experience will reveal God's goodness in a way never experienced before. The Lord gives and takes away...Blessed be the name of the Lord....I,personally need to believe that everyday,most days I don't...I fear what *could *happen....I worry and fret,but God is with us,even though I have sinful doubts at times. I know His sovereign care is over your family even now....we will continue to pray. I do not know how hard it is,but I know it has to be.
    In Christian Love,
    Kim

     
  • At 11:53 AM, October 30, 2006, Anonymous jan margrave said…

    i continue to be amazed at claire and eliot's parents - bringing a baby into the world knowing how brief the time would be and then loving it so HARD and so TENDERLY and CELEBRATING the precious gift that God has given them. i am truly amazed. the choice you both made was surely a difficult one but one that God used to reach so many people - friends and strangers all over the country. i have a soft granma's heart anyway but now it is truly SQUISHY with love for you and for your babies. i pray for strength and hope for matt and ginny in the days ahead and for God's constant presence for Claire and her family.

     
  • At 12:41 PM, October 30, 2006, Blogger Kris said…

    I just checked over at Eliot's blog, and it was deeply touching. These precious babies have so much life to share! I pray that you will have more days to share w/ your daughter. Thanks for sharing her life w/ us.

     
  • At 1:29 PM, October 30, 2006, Anonymous Anonymous said…

    I found Claire's site through Eliot's blog. I want your family to know that I am praying for her each and every day. I pray that you experince this miracle of life that God has given you. I pray that Claire's siblings will rest in the comfort of the Lord also. I pray that each hour with Claire is a lasting memory. May God continue to give you strength!
    Prayers from Atanta, Georgia

     
  • At 2:39 PM, October 30, 2006, Blogger Sarah's In the Midst of It said…

    I found Claire's site through Eliot's and just wanted to let you know that I'll be praying for Claire and your family. My daughter was born in May with a very rare syndrome and had open-heart surgery in August, and I think our experience with her has just opened my eyes to realize how precious these "special" babies really are! Blessings on your family~

     
  • At 4:46 PM, October 30, 2006, Anonymous Anonymous said…

    I read the following poem and thought of your family, especially Claire "Hope" and how she has taught us all to have Hope. You are in my thoughts and prayers. Love, Kym Little


    ~~ "Hope"~~
    If you can look at the sunset and smile,
    then you still have hope.

    If you can find beauty in the colors of a small
    flower, then you still have hope.

    If you can find pleasure in the movement of
    a butterfly, then you still have hope.

    If the smile of a child can still warm your heart,
    then you still have hope.

    If you can see the good in other people,
    then you still have hope.

    If the rain breaking on a roof top can still lull
    you to sleep, then you still have hope.

    If the sight of a rainbow still makes you stop
    and stare in wonder, then you still have hope.

    If the soft fur of a favored pet still feels pleasant
    under your fingertips, then you still have hope.

    If you meet new people with a trace of excitement
    and optimism, then you still have hope.

    If you give people the benefit of a doubt,
    then you still have hope.

    If you still offer your hand in friendship to others
    that have touched your life, then you still have hope.

    If receiving an unexpected card or letter still brings
    a pleasant surprise, then you still have hope.

    If the suffering of others still fills you with pain and frustration, then you still have hope.

    If you refuse to let a friendship die, or accept that
    it must end, then you still have hope.

    If you look forward to a time or place of quiet and
    reflection, then you still have hope.

    If you still buy the ornaments, put up the Christmas
    tree or cook the turkey, then you still have hope.

    If you still watch love stories or want the endings
    to be happy, then you still have hope.

    If you can look to the past and smile,
    then you still have hope.

    If, when faced with the bad, when told everything
    is futile, you can still look up and end the conversation
    with the phrase...."yeah....BUT.." then you still have hope.

    Hope is such a marvelous thing. It bends, it twists, it sometimes hides, but rarely does it break. It sustains us when nothing else can. It gives us reason to continue and courage to move ahead, when we tell ourselves we'd rather give in.

    Hope puts a smile on our face when the heart cannot
    manage.

    Hope puts our feet on the path when our eyes cannot
    see it.

    Hope moves us to act when our souls are confused
    of the direction.

    Hope is a wonderful thing, something to be cherished
    and nurtured, and something that will refresh us in return.
    And it can be found in each of us, and it can bring light
    into the darkest of places. Never lose hope.
    --Author Unknown

     
  • At 7:13 PM, October 30, 2006, Blogger Somewhere over the rainbow said…

    I am so sad to hear about Eliot. =(
    I enjoy looking on his blog at all his "birthdays". LOVE the cowboy outfit!

    God Bless You ALL!

    Praise God for another day!!

    Daphne

     
  • At 8:30 PM, October 30, 2006, Blogger Lisa said…

    I am one who was directed to your site via Eliot Mooney.

    I just wanted to remind you that I am still saying prayers for your family and that beautiful baby girl Claire! I hope you continue to have many special and amazing moments with her!

    We are truely sad about Eliot's passing, but if it were not for Eliot, I would have never known to pray for Claire! Many more great days to your family!

    Lisa Hartsfield
    Arlington, TX

     
  • At 8:47 PM, October 30, 2006, Anonymous Anonymous said…

    MANY, MANY continued prayers for both families. Thank you to both families for opening your private life with us. All the readers who have kept up with these two beautiful angels care deeply for them, all four parents, and big sister. You all have SO many prayers going up for you. Much love. Lisa in S.C.

     
  • At 10:03 PM, October 30, 2006, Blogger Peach said…

    Still praying, too. May God carry you each and every moment of Claire's precious life.

     
  • At 11:24 PM, October 30, 2006, Anonymous Anonymous said…

    I found out about Claire via Eliot's site. Both sets of parents and these two precious babies are an inspiration. Your Courage, Faith, and HOPE is contagious. Thank you for sharing her life!
    Prayers from Texas for sweet baby Claire and her family:)

     
  • At 6:55 AM, October 31, 2006, Anonymous Anonymous said…

    Keep fughting Claire! Your story has reached so far as Georgia but through your brother in Auburn. God bless you!!!! YOu are in my prayers!

     
  • At 7:58 AM, October 31, 2006, Blogger On Our Way To Russia said…

    Thinking of you all and Claire. Blessings and Prayers. Thank you for sharing her little life with us. God Bless!

     
  • At 2:17 PM, October 31, 2006, Anonymous april said…

    I'm so sorry to hear that. I just read his story this weekend, through your website. I will pray for his family, and continue to pray for yours. Please know what an inspiration of "faith, family and friends" the Cox is to so many people! Bless you all.

     
  • At 10:13 PM, October 31, 2006, Anonymous Anonymous said…

    Prayers to you and yours from Minnesota.

     
  • At 9:15 AM, November 01, 2006, Blogger On Our Way To Russia said…

    Still praying for you all and Claire. God Bless!

     
  • At 8:21 PM, October 02, 2007, Anonymous Anonymous said…

    god bless you!!

     

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